when will my brain work again? - Action on Postpar...

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when will my brain work again?

Isabella5991 profile image
8 Replies

I’m really concerned since I took the poisonous drug quetiapine. I was on it for one week. Severely sedated and suicidal thoughts. I’ve been off if since Wednesday and now it is Sunday and I still can’t feel anything. I’m still sedated. I feel like there’s a wall over my brain and I can’t feel. I’m so scared this drug has damaged my brain. I’m bipolar 1 and many other conditions and been unwell most of my life. HOW is it that I’m not feeling any mental dip after 5 days no meds. I am literally bat shit crazy without medicine. HOW do I need nothing now? To the point I can’t feel anything. How has quietiapine damaged me this badly. Please tell me when i will start feeling something? It’s got to the point where I want to feel some anxiety just so I know I’m ok and me. Some people online have said it takes years. This is miserable to live like this, I couldn’t do years.

I’ve been in a and e and now crisis team and they’re pretty useless. Supposed to be getting new meds on Monday but there’s no way I’m taking anything more. I will only take when I feel I need it.

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Isabella5991
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8 Replies
x_Amy profile image
x_AmyVolunteer

Hi Isabella,

I really feel for you and I do hope these symptoms are temporary. I remember having such similar anxieties between medications, especially when I didn’t feel in touch with my emotions. It’s a scary experience but it will pass 💕

When we are in recovery, all we want is to feel like ourselves again and unfortunately that can cause us huge anxiety and also some hyper vigilance. The positive here is that you sound really self aware, and I would again advise you to put your experiences in writing for when Monday comes and explain to the MH team that you’re (understandably) reluctant to start a new medication.

An important thing to note is that stopping medication abruptly can also bring on its own set of side effects, so please take good care and rest as much as you can today.

Thinking of you, things are going to get better 💐 xx

Jenny_at_APP profile image
Jenny_at_APPPartner

Hi Isabella5991

I’m so sorry you’re feeling so worried and scared, I really hope things start to feel better over the coming days and you can have a good talk about everything with your team tomorrow.

It seems so variable in how long it can take medications to take full effect and then again when coming off them, very individual to each person. Writing down your questions and concerns and how you’ve been feeling is a great suggestion and I hope you can get some answers and reassurance tomorrow.

It may take some time to adjust and rebalance after a new medication being introduced and then withdrawn from your system in a short period of time… Take it easy and do reach out to your team if you’re very concerned, it’s good you’ll have some contact with them tomorrow.

Sending very best wishes, Jenny x

MotherOfBears profile image
MotherOfBears

Hi Isabella

Others have replied with some excellent advice. But I just wanted to say that I understand how scary this must feel and I am sending best wishes.

Hope the meeting today goes well

xxx

JosephineFay profile image
JosephineFay

Hi Isabella, these drugs are incredibly powerful and I'm having an awful time on Haloperidol which is an antipsychotic like yours. I hope that it's OK to say that it seems to be very random who has adverse side effects on them and who is OK on them. I have started seeing a Dr Jessica Robinson she is a private psychiatrist, psychotherapist and homeopath and GP. Maybe you could contact her after you've spoken to your team. She rarely prescribes pharmaceutical drugs but will work with you along side the drugs if you're already on them. She can also help people come off safely. I have found that when I've recently tried to come off just like that my symptoms got worse because of withdrawl. I am now trying to come off using micro tapering techniques. I understand from lots of research that many psychiatrists do not routinely know how to taper clients of antipsychotics or know what to do when we have adverse reactions. I think that given that you've only been on them for a short while with help from your team you should be able to stay off them. Your team should be aware that you might be vulnerable to withdrawl symptoms including psychosis as you try to remain off as these drugs alter the brains normal processes. If you have a sympathetic and caring team this is the time to get as much support as possible. drjrobinson.co.uk/ I have added Jessica's details. I'm also trying to see if my NHS doctor will write me referral to Ian Jones to get PTSD put on my diagnosis so far my NHS doctor is not allowing me to do this. Hope all my thoughts above is helpful and that you find the support from your team as you try to stay off meds. I am getting depression, incredibly low mood, had the suicidal feelings and horrendous insomnia on the meds yet trying to come off these got worse before stabilising between each reduction. If your team can help you come off your meds and monitor you closely that would be amazing as I am an advocate of natural healing methods having had such terrible side effects on these drugs . Keep us updated and let us know what yoy decide to do and how things go. Jo

Isabella5991 profile image
Isabella5991 in reply to JosephineFay

Thank you for this xx

I am on day 6 of no antipsychotic but still sedated and numb. What the heck has this medicine done to me. They are prescribing olanzapine now but I don’t think I will start it until I can feel something again. I am open to natural methods now. I wasn’t before when I was very ill as nothing natural worked, but now I’m lobotomised from medicine I am keen to try xx

Rachel_at_APP profile image
Rachel_at_APPPartnerAPP

Morning Isabella5991, I’m really sorry to hear you’re struggling as you are. Did you manage to rest overnight at all? I remember when I was on an anti psychotic feeling extremely numb and withdrawn. It did get better, but it did take time.

I understand from your post that you’re not now on the medication, keep in touch with the health professionals around you. Although I’m sorry to hear that you don’t think they’ve been too great. It’s really important to keep in touch with them, tell them what’s going on for you, and how you need their help.

You’ve had some messages above including from JosephineFay, who mentioned Prof Ian Jones second opinion. You can read more about that here: app-network.org/get-help/ta...

Thinking of you. Lots of rest, write down any worries, concerns and questions for the health team. But also for you too, I found writing really helpful to me when I was poorly.

Take care.

Rachel x

SammySeal profile image
SammySeal

Hi Isabella

Sorry that you're having such a rubbish time. I've nothing further to add than what folks here have already said, but just to know that I, like others, wish the best for you and are here to listen.

It's interesting to hear your feelings; as for me, Quetiapine has been a real lifesaver; it's really turned things around for me and has set me off in a good direction of recovery - the tiredness is improving over time to get more manageable. But then, in the past, I've taken badly to other meds that other people have thought are great. Just goes to show that one person's 'poison' drug can be another's 'miracle'. I guess everyone's bodies and brains take to meds differently.

Thoughts are with you

Sammy x

Isabella5991 profile image
Isabella5991 in reply to SammySeal

Totally true. Didn’t work for me at all but I’m glad it works so well for you and others xx thank you for being here xx

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