I was recently contacted about participating in a trial for the Viking Therapeutics drug VK0214-102, which is a potential treatment for AMN. Apparently they are looking for 36 participants around the country. I am not sure yet whether I will be able to participate in this study, but I'm wondering if anyone else in this group has been contacted about participating?
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Aaron98
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This is the new drug in the pipeline that was announced at the virtual conference: new oral small molecule to treat adrenoleukodystrophy which is a novel small molecule agonist of the thyroid hormone. I remembered the keyword molecule. They just received FDA approval. I'm back with Min-102 using the drug which is to be completed in 2023.
Min 102 trial is until 2023 that seems long is that what they told you on the extension on Min 102??? Just curious I was told a few different things about that trial
Probably not. But the sponsor is paying for my MRI's every 3 months until September and 6 mos. thereafter which will be reviewed by a radiologist familiar with Loes score. Also, all future trial appointments will be with a doctor familiar with adult onset ALD. I am receiving the best in care!
Stanford, Palo Alto, California. I live in the Bay Area. I forgot that I received a tentative schedule for the trial and my next visit is 10/21 with an annual visit ending 2/24.
I have not been contacted but may be due to already participating in MIN-102. I’d be willing to hear more about it to make an educated decision which is more promising.
I am interested in how you all were notified or became aware of MIN-102 and if that same channel was used for the Viking trial. Please share your insights, Thanks!
Hi, Coslet. Right now I’m taking part in Viking medical trials in Seattle, Washington. As I know they still looking for AMN people how will suit this trial.
I’m hooked up with the one out of Gainesville. Weighing whether or not I’m going to sign up. It states no benefit to study patient. With my current work and parenting situation I’m not sure I’m up for that type of clinical study.
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