Sadly, after a 9+ year fight, my husband passed on Saturday, March 18. He was the most amazing guy and part of my heart is gone now. He never gave up, always swore he would be the one to beat this beast. He was smiling and cracking jokes till the end. And even managed to make me laugh when he could not longer speak.
Thank you to all the kind people in this forum who answered my questions and addressed my fears. May the person reading this, beat this beast.
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Wyldhare22
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I'm so sorry to hear that. He was lucky to have you by his side, supporting him all the way. I sometimes worry that the impression we get of their suffering at the end sticks with us. But I love it when I hear that his sense of humor stayed with him to the end.
I am so sorry to hear this. God bless and RIP. Hopefully, in a few years we will get to a stage that no one suffers from this terrible disease. It is heartbreaking to see these warriors succumb. Please also take care of yourself 🙏🙏
I'm so very sorry for your loss. I read your bio. What a rough road you've been on. God bless you and keep you strong and comfort you. Rest in peace dear husband of yours.
My deepest condolences to you. He was fortunate to have you in his corner. Praying you find peace in the next phase of your journey. “Even managed to make me laugh he could no longer speak.” ❤️❤️ What a beautiful soul he must have been.
Im so sorry to hear of your husband’s rough journey. Also thank you for documenting his progress so accurately as it helps us all to understand and fight this. I only hope to have your husband’s humor till the end. RIP brother.
I am so sorry for your loss. I’m sure it was hard to post this as it happened so recently. I’m not sure I’d be able to post at all when the time comes for my husband. I hope you find comfort in your memories. I wish you strength and peace. Remember to be kind to yourself. Take care.
my heartfelt condolences for the loss of your husband. Clearly you are a loving and caring caregiver that stood by him in his time of greatest need. Men like us need that loving caregiver by our side to hold us and kiss us goodbye. Grieve for us after we have passed. You were” all that “ for your dear husband, he was a lucky guy to have you there by his side.
Very sorry for your loss. Take comfort in knowing he's now pain free and at peace. He was lucky to have you by his side through the 9 years of battling this horrible decease. Take care.
I for one am so proud of how he handled it till the end. Don’t you get get it? Think About it. He did what he said he would. He “beat the beast” by not giving into the fear. He laughed at the beast and made you laugh until the end. To me….that’s beating the beast and how I pray I can go out. God bless him!
You've been through such a tough battle, and I'm so sorry for your loss. I'm pretty new here myself (wife of warrior Dx'd last fall) - your strength and your husband's humor are an inspiration. Sending wishes for peace and rest and healing.
Humor is a spice of life and sadly not everyone is blessed with having it. It sounds like you and your husband enjoyed many laughs. May those memories give you strength and joy in your future and may you find humor in new ways. Godspeed to you and your husband.
I am so very sorry for your loss and hope the memories of your time together never fade. He was very lucky to have you by his side - I am positive of that. Please know this; you and all people that accompany us on our path forward, are deeply loved. Take care of yourself.
The way i hope to go...with style...the sign of a true warrior...may your sorrow be brief...the good memories everlasting...know hes just around the corner....deepest sympathies....bw
So very sorry for your profound loss of your beloved. Praying for your comfort and the peace that passes all understanding. By making you laugh when speech was no longer an option he was still thinking of you more than himself to the end. What a beautiful soul
He made you laugh when he couldn't talk?? Sounds like my kind of guy! Even if I don't beat this, I've gotten so much from this forum - so much from the stories and anecdotes of my brothers like your husband - that I am more brave, more thoughtful, more thankful, and (yes) even more joyful. That your husband was able to smile and crack jokes is a wonder and inspiration to me. May you find peace.
Even when expected the death of a loved one can still be shocking. We think we are prepared, yet, how can one ever prepare for such a significant loss? We learn to live with it. A course I was required to take was titled, "The Psychology of Grief". A number discussed in that course was 100,000. That is the number of times the average person's memory flashes back to a deceased loved one before the pain starts to ease. There is a pain that I can only describe from my experience, as palpable, a physically felt pain that affects vital signs--still to this day after nearly 60 years.
Family, friends and clergy can be helpful--but sometimes--NOT! At times our own counsel, thinking of the past, can help us to be grateful for the time we had with our loved ones. Watching the sun rise or set while reflecting on joyous times together that will forever be tinged with a bit of sorrow can be a step in learning to live with a significant loss.
Although for me, the pain of a loss in my early life is still raw at times, as if it was yesterday, not 60 years ago, I would not trade sharing those short years with my grandfather, my hero, to avoid the pain.
Dear Wyldhare22, find as much peace as you can and when it hurts try to remember the best of times with gratitude to counter the pain. HE would want that for you.
hello Wyldhare22, following up on this re: grief, and it might not be for you, but a dear friend of mine who lost her husband joined a "bereavement group" and says it has helped her a lot. all the best to you. you and your husband are in my thoughts. virtual hugs.
So very sorry to hear of the passing of your beloved Husband. Sending prayers and love to you and your family. May he be forever in your heart and mind.
I hate to see this.......sounds like a great guy. Wishing you peace in your soul, resolve to face the days ahead, and loving memories to forever hold in your heart.
He sounds like a guy everyone would be blessed to know. WHAT A FIGHTER and capable of generating such love in you. A real man has passed and he will be missed.
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