I've been diagnosed back in April with NSCLC (ALK Positive) currently on Alectinib. I wish to find out from other individuals with a similar condition how they are coping with this treatment. Thank you.
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Rockape117
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Hi Rockape117, I am ALK Positive too and there’s a great ALK support group on Facebook one for the U.K. and a Worldwide one too. It offers amazing support for what’s happening in the U.K. and also what’s happening worldwide. I was diagnosed 5 years ago and am currently on crizotinib. If you look at my previous posts they are mostly about ALK. Here’s the link alkpositive.org.uk
This is from the Worldwide Group too. lookaside.fbsbx.com/file/AL...
RoyCastleHelplinePartnerAsk the NurseRoy Castle
Hello Rockape117,
and welcome to out forum, Bow-19 has given you some excellent links to the ALK support group on Facebook and other very useful sources of information.
Kind regards
Roy Castle Helpline
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