Thyroid or Post Polio

[Carri3]

I have already posted on in this community and have had very helpful advice on hypo issues for which I am really grateful. However I also have post polio syndrome so I am never sure if the painful tired legs are the symptoms of hypo or PP or both 😟 just wanted to share this with you 💟

[SlowDragon Administrator]

looking at previous posts you not long ago increased to 75mcg daily

Bloods need retesting 6-8 weeks after any dose change or brand change in levothyroxine

Which brand of levothyroxine are you currently taking

Are you testing vitamin D, folate, ferritin and B12 at least annually

[Carri3 in reply to SlowDragon]

Hi SlowDragon, hope you're well. I am currently taking 50 mcgs of Mercury Pharma & 50 mcgs of Thyronine (I still have these from Australia) and yes I was prescribed 75mcgs but decided to add the 25 myself as the Doctor said he could have prescribed up to 125mcgs but we both agreed to increase gradually. My vit D was 54, B12 292, Ferritin 38,. Folate, 7.1 and have been taking B complex, B12 vit D+K sublingual, for 6 weeks so will get tested again in 2 weeks.

[SlowDragon Administrator in reply to Carri3]

what’s the units on vitamin D result

Vitamin D 54nmol - is low

54ng/mL is good

Ferritin is low

Look at increasing iron rich foods in your diet

[Carri3 in reply to SlowDragon]

Vitamin D was 54 nmo/L and I am eating more red meat chicken livers spinach etc.

[SlowDragon Administrator in reply to Carri3]

so you need to supplement vitamin D

Low vitamin D causes joint and leg pain

Aiming for at least over 80nmol

suggest 2000- 3000iu daily and retest in 2-3 months

GP will often only prescribe to bring vitamin D levels to 50nmol.

Some areas will prescribe to bring levels to 75nmol or even 80nmol

leedsformulary.nhs.uk/docs/...

GP should advise on self supplementing if over 50nmol, but under 75nmol (but they rarely do)

mm.wirral.nhs.uk/document_u...

But improving to around 80nmol or 100nmol by self supplementing may be better

pubmed.ncbi.nlm.nih.gov/218...

vitamindsociety.org/pdf/Vit...

Once you Improve level, very likely you will need on going maintenance dose to keep it there.

Vitamin D mouth spray by Better You is very effective as it avoids poor gut function.

There’s a version made that also contains vitamin K2 Mk7. 

One spray = 1000iu

amazon.co.uk/BetterYou-Dlux...

Another member recommended this one recently

Vitamin D with k2

amazon.co.uk/Strength-Subli...

It’s trial and error what dose we need, with thyroid issues we frequently need higher dose than average

Vitamin D and thyroid disease 

grassrootshealth.net/blog/t...

Vitamin D may prevent Autoimmune disease 

newscientist.com/article/23...

Web links about taking important cofactors - magnesium and Vit K2-MK7

Magnesium best taken in the afternoon or evening, but must be four hours away from levothyroxine

betterbones.com/bone-nutrit...

medicalnewstoday.com/articl...

livescience.com/61866-magne...

sciencedaily.com/releases/2...

Interesting article by Dr Malcolm Kendrick on magnesium 

drmalcolmkendrick.org/categ...

Vitamin K2 mk7

betterbones.com/bone-nutrit...

healthline.com/nutrition/vi...

[Carri3 in reply to SlowDragon]

Thanks again SD for taking the time to reply, your valuable knowledge and information is much appreciated.

[Carri3 in reply to SlowDragon]

Thanks SD🙂