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Ruxolitinib
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Ruxolitinib and healing
I wonder if
Ruxolitinib
prevents soft tissue healing? Anyone able to comment?
I wonder if
Ruxolitinib
prevents soft tissue healing? Anyone able to comment?
FinnMcCoull
in
MPN Voice
8 months ago
Persistant cough
I eventually got a ct scan that shows scarring at the base of my lungs this wasn’t there before I started
Ruxolitinib
. My haematologist will insist it’s not the pills.
I eventually got a ct scan that shows scarring at the base of my lungs this wasn’t there before I started
Ruxolitinib
. My haematologist will insist it’s not the pills.
Mudmaker
in
MPN Voice
2 months ago
Osteoporosis and PV
I was wondering if anyone else was taking Alendronic acid whilst on
Ruxolitinib
? Many thanks, All the very best, Bobbie
I was wondering if anyone else was taking Alendronic acid whilst on
Ruxolitinib
? Many thanks, All the very best, Bobbie
Bobadog
in
MPN Voice
7 months ago
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Pegasys
Husband was started on Pegasys after being on
Ruxolitinib
since 2017.. He has Polycythaemia Vera He has coped really well with Rux but has had to come off owing to large amount of skin cancers over past 12months. Pruritus has been a big issue but Rux really was the answer.
Husband was started on Pegasys after being on
Ruxolitinib
since 2017.. He has Polycythaemia Vera He has coped really well with Rux but has had to come off owing to large amount of skin cancers over past 12months. Pruritus has been a big issue but Rux really was the answer.
waddles22
in
MPN Voice
4 months ago
Just wanted to share my Primary Myelofibrosis journey so far…….
Started
Ruxolitinib
in October 2023 which has been great as has stopped the itching (Pruritus), night sweats and has also shrunk the spleen which means am able to eat more to put back the weight which had been lost.
Started
Ruxolitinib
in October 2023 which has been great as has stopped the itching (Pruritus), night sweats and has also shrunk the spleen which means am able to eat more to put back the weight which had been lost.
LFCLove
in
MPN Voice
3 months ago
Ruxolitinib and skin cancers
I’ve just seen that
ruxolitinib
has now been approved for PV, which is great, BUT do take care of sun exposed skin.
I’ve just seen that
ruxolitinib
has now been approved for PV, which is great, BUT do take care of sun exposed skin.
Gipsy123
in
MPN Voice
6 months ago
NICE Final Guidance on Ruxolitinib for the treatment of Polycythaemia Vera
Ruxolitinib
is already approved, in similar cases, for the treatment of PV patients in Scotland and Northern Ireland and we hope that the NICE recommendation will also be adopted in Wales in due course.
Ruxolitinib
is already approved, in similar cases, for the treatment of PV patients in Scotland and Northern Ireland and we hope that the NICE recommendation will also be adopted in Wales in due course.
Mazcd
MPNVoice
in
MPN Voice
8 months ago
Thank you and latest blood results
Thank you for sharing your experiences with
Ruxolitinib
. I have now completed 4 weeks on Rux, 20 mg twice a day for PMF intermediate 2. My bloods, already low and out of range before I started, have dropped considerable.
Thank you for sharing your experiences with
Ruxolitinib
. I have now completed 4 weeks on Rux, 20 mg twice a day for PMF intermediate 2. My bloods, already low and out of range before I started, have dropped considerable.
artydutch
in
MPN Voice
3 months ago
Choosing medication for PV/early MF
I am due to start on
Ruxolitinib
in the next few weeks but I am quite worried about the side effects, the specialist has been advised to put me on the highest does I can manage.
I am due to start on
Ruxolitinib
in the next few weeks but I am quite worried about the side effects, the specialist has been advised to put me on the highest does I can manage.
DarcyShepp
in
MPN Voice
16 days ago
Newly diagnosed Myelofibrosis Stage 2
I am reaching out to the MPN community for their experiences on being on
Ruxolitinib
.
I am reaching out to the MPN community for their experiences on being on
Ruxolitinib
.
Searcher56
in
MPN Voice
8 months ago
Which other drugs are usually used alongside ruxolitinib when it's not having enough effect on its own?
If I do end up having to take another drug alongside the
ruxolitinib
, what is it likely to be? Carol.
If I do end up having to take another drug alongside the
ruxolitinib
, what is it likely to be? Carol.
MCW22
in
MPN Voice
8 months ago
VEXAS and Sweet's Syndrome
- Janus kinase inhibitors, e.g.
ruxolitinib
, can be used to manage symptoms when steroids are reduced. - In male patients with Sweet's syndrome where there is lung involvement, and where their condition keeps flaring up when steroids are reduced, VEXAS should be considered.
- Janus kinase inhibitors, e.g.
ruxolitinib
, can be used to manage symptoms when steroids are reduced. - In male patients with Sweet's syndrome where there is lung involvement, and where their condition keeps flaring up when steroids are reduced, VEXAS should be considered.
Shell567
Sweet's Syndrome UK
in
Sweet's Syndrome UK
3 months ago
Anyone near Dorking in Surrey who’d like to meet up?
I’m taking 15 mg
ruxolitinib
twice a day, and since weekly injections of EPO were added, my haemoglobin levels have pretty well normalised. Definitely feel more energetic. I really enjoyed meeting other people with MPNs at the Edinburgh forum recently.
I’m taking 15 mg
ruxolitinib
twice a day, and since weekly injections of EPO were added, my haemoglobin levels have pretty well normalised. Definitely feel more energetic. I really enjoyed meeting other people with MPNs at the Edinburgh forum recently.
Gipsy123
in
MPN Voice
6 months ago
Ruxolitinib not working so well
I was put on
Ruxolitinib
and at first it worked very well but now my platelets have shot up to 609 when all other counts are down in my boots!! The CRP is below 1mg so it is not likely an infection has caused this sudden increase in the platelet count.
I was put on
Ruxolitinib
and at first it worked very well but now my platelets have shot up to 609 when all other counts are down in my boots!! The CRP is below 1mg so it is not likely an infection has caused this sudden increase in the platelet count.
Searcher56
in
MPN Voice
8 months ago
Post ET MF - Advice Please
I would like other treatment options such as Interferon &
Ruxolitinib
to be addressed, and I would be grateful for any advice on how best to approach this. I am also considering asking if he can be referred to an MPN specialist. Thank you for any advice.
I would like other treatment options such as Interferon &
Ruxolitinib
to be addressed, and I would be grateful for any advice on how best to approach this. I am also considering asking if he can be referred to an MPN specialist. Thank you for any advice.
moongazer100
in
MPN Voice
3 months ago
Ruxolitinib (Jakafi) ; A generic ?
When will this drug be off patent or available as a generic? Any ideas?
When will this drug be off patent or available as a generic? Any ideas?
Innessant
in
MPN Voice
8 months ago
Jakafi + Grapefruit
Have those of you on Jakafi (
ruxolitinib
) seen this warning?
food Applies to: Jakafi (
ruxolitinib
) Do not consume grapefruit or grapefruit juice during treatment with
ruxolitinib
unless directed otherwise by your doctor.
Have those of you on Jakafi (
ruxolitinib
) seen this warning?
food Applies to: Jakafi (
ruxolitinib
) Do not consume grapefruit or grapefruit juice during treatment with
ruxolitinib
unless directed otherwise by your doctor.
hunter5582
in
MPN Voice
10 months ago
Shingles and Ruxolitinib
[/i] [i]If you’re on
Ruxolitinib
, you have to be careful about your skin,[/i] I was told to be aware and careful of my skin when taking Hyroxycarbonide but not
Ruxolitinib
and not that it had the side effect of shingles.
[/i] [i]If you’re on
Ruxolitinib
, you have to be careful about your skin,[/i] I was told to be aware and careful of my skin when taking Hyroxycarbonide but not
Ruxolitinib
and not that it had the side effect of shingles.
nanmc
in
MPN Voice
27 days ago
Roxadustat and Revolade for MPN
In order to continue taking
Ruxolitinib
, I took hormones for a long time before, but then side effects also came along. So my attending doctor asked me to try Roxadustat and Revolade these two drugs.
In order to continue taking
Ruxolitinib
, I took hormones for a long time before, but then side effects also came along. So my attending doctor asked me to try Roxadustat and Revolade these two drugs.
merlisa
in
MPN Voice
9 months ago
Consultant in South Wales?
I have had PMF for a long time, now taking
Ruxolitinib
. I am thinking about moving to South Wales to be near family. Does anyone have experience of Haematology Dept at Cardiff University Hospital? Any info would be v helpful. Thank you x
I have had PMF for a long time, now taking
Ruxolitinib
. I am thinking about moving to South Wales to be near family. Does anyone have experience of Haematology Dept at Cardiff University Hospital? Any info would be v helpful. Thank you x
Bulstrode5
in
MPN Voice
9 months ago
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