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Some good news at last.
Some good news at last. Saw EP for 6 week follow up, 2 weeks ago, reduced Bisoprolol to 1.25mg but continue with heart failure meds and booked echocardiogram which I had yesterday. Sonographer was lovely, very chatty, I had my previous report from Late January 24 with me, Ejection Fraction 28%, severe
Some good news at last. Saw EP for 6 week follow up, 2 weeks ago, reduced Bisoprolol to 1.25mg but continue with heart failure meds and booked echocardiogram which I had yesterday. Sonographer was lovely, very chatty, I had my previous report from Late January 24 with me, Ejection Fraction 28%, severe
AmandaLouise77
in
Atrial Fibrillation Support
23 days ago
Return of the Duck. The Saga Continues.......
Good morning guys and gals.Hope everyone is as well as they can be. Well, here's the promised update from a couple of years ago but to be fair, nothing much had happened on the heart surgery front, I'd been in nsr and I have still been contributing replies. Settle down with a strong drink of choice,
Good morning guys and gals.Hope everyone is as well as they can be. Well, here's the promised update from a couple of years ago but to be fair, nothing much had happened on the heart surgery front, I'd been in nsr and I have still been contributing replies. Settle down with a strong drink of choice,
Ducky2003
in
Atrial Fibrillation Support
1 month ago
Lymphocytic infiltration
As some of you may know that for the last year I have been suffering raised lessions and skin rashes etc , which started after my 6th covid jab . At first they put it down as reaction to the jab and as recently as last mont I got a letter from MDT stating it was there opinion that my skin issues were
As some of you may know that for the last year I have been suffering raised lessions and skin rashes etc , which started after my 6th covid jab . At first they put it down as reaction to the jab and as recently as last mont I got a letter from MDT stating it was there opinion that my skin issues were
cartwheels
in
CLL Support
5 months ago
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Free of polymyalgia
Hi I just wanted to tell everyone that you can finally be free of polymyalgia.I was diagnosed in 2020 and it was horrendous. The pain was terrible but it took my GP a few months to finally decide I had polymyalgia. I was put on steroids and it was a light bulb moment for me as within hours most of the
Hi I just wanted to tell everyone that you can finally be free of polymyalgia.I was diagnosed in 2020 and it was horrendous. The pain was terrible but it took my GP a few months to finally decide I had polymyalgia. I was put on steroids and it was a light bulb moment for me as within hours most of the
Rosshigh
in
PMRGCAuk
4 days ago
Mike H
CABG operation feb 2023, ablation carried out during open heart surgery also mitral valve clip installed, have had AF for as long as I can remember, on amioderone plus edoxaban and a cocktail of other meds, waiting for a electral cardioversion to get my heartbeat in to sinus rythem
CABG operation feb 2023, ablation carried out during open heart surgery also mitral valve clip installed, have had AF for as long as I can remember, on amioderone plus edoxaban and a cocktail of other meds, waiting for a electral cardioversion to get my heartbeat in to sinus rythem
Georgeorwell1959
in
Atrial Fibrillation Support
3 months ago
Coronary artery calcification, osteoporosis and B12 deficiency- what to do next ?
I have just been found to have coronary artery calcification incidentally when having a Lung Healthcare scan. This information was passed to my GP who wants to put me on statins (Atorvastatin 20mg daily). I have no idea of the severity or extent of the calcification, only that it was found. I don't
I have just been found to have coronary artery calcification incidentally when having a Lung Healthcare scan. This information was passed to my GP who wants to put me on statins (Atorvastatin 20mg daily). I have no idea of the severity or extent of the calcification, only that it was found. I don't
Cherylclaire
Forum Support
in
Pernicious Anaemia Society
7 months ago
Open heart surgery
I had my first meeting with the surgical team at Papworth yesterday . I’m now pencilled in for an aortic valve replacement in June. We discussed my AF , the effects of surgery on episodes after and anticoagulants . Interestingly they stated that oral anticoagulants reduce the risk of stroke by 60/70%
I had my first meeting with the surgical team at Papworth yesterday . I’m now pencilled in for an aortic valve replacement in June. We discussed my AF , the effects of surgery on episodes after and anticoagulants . Interestingly they stated that oral anticoagulants reduce the risk of stroke by 60/70%
Hammerboy
in
Atrial Fibrillation Support
3 months ago
fatigue
hello I am new on here. I have been treated for polymyalgia rheumatica PMR for 15 yrs . I no longer suffer the high level of discomfort, but have the most dreadful fatigue the past 3 yrs . I have had investigations for poor adrenal function ESR CRP, but all normal . What has been slightly abnormal is
hello I am new on here. I have been treated for polymyalgia rheumatica PMR for 15 yrs . I no longer suffer the high level of discomfort, but have the most dreadful fatigue the past 3 yrs . I have had investigations for poor adrenal function ESR CRP, but all normal . What has been slightly abnormal is
Avadip12
in
Thyroid UK
2 months ago
PMR Diagnosis
I have GCA but now wondering if I have PMR. How do you get a diagnosis of PMR blood tests?
I have GCA but now wondering if I have PMR. How do you get a diagnosis of PMR blood tests?
LRevell
in
PMRGCAuk
2 months ago
Hello - I'm new to all this.
Just been diagnosed with Polymyalgia 2 weeks ago and am on Prednisone 15mg steroid dose alongside 2 x 500mg Naproxen, 1 dose 20mg Omeprazole, 4 daily doses of 2 x 500mg paracetamol plus 2 Adcal-D Calcium/vit D tablets. The pain is manageable now - I can get some sleep and the pain/stiffness in my shoulders
Just been diagnosed with Polymyalgia 2 weeks ago and am on Prednisone 15mg steroid dose alongside 2 x 500mg Naproxen, 1 dose 20mg Omeprazole, 4 daily doses of 2 x 500mg paracetamol plus 2 Adcal-D Calcium/vit D tablets. The pain is manageable now - I can get some sleep and the pain/stiffness in my shoulders
Positive__
in
PMRGCAuk
2 months ago
Question on PMR and Temporal Arteritis
Does anyone know: would an MRI show Temporal Arteritis or would a person need a biopsy to determine if Temporal Arteritis was present? Asking for a person newly diagnosed with PMR and in the ER dept was told she had Temporal Arteritis. Yesterday she went to the rheumatologist and was told she definitely
Does anyone know: would an MRI show Temporal Arteritis or would a person need a biopsy to determine if Temporal Arteritis was present? Asking for a person newly diagnosed with PMR and in the ER dept was told she had Temporal Arteritis. Yesterday she went to the rheumatologist and was told she definitely
Musiclady18
in
PMRGCAuk
2 months ago
AF and stroke
I was diagnosed in 2018 with AF and prescribed bisoprolol and flecanide. Then I had a stroke in July 23. After 2 months I was finally allowed home. I had an episode of AF and was admitted for a 1 night stay where I was told I wasn't given apixaban due to y age of 38 at the time and being low risk. At
I was diagnosed in 2018 with AF and prescribed bisoprolol and flecanide. Then I had a stroke in July 23. After 2 months I was finally allowed home. I had an episode of AF and was admitted for a 1 night stay where I was told I wasn't given apixaban due to y age of 38 at the time and being low risk. At
Af8b_futter
in
AF Association
6 months ago
paroxysmal AF and flying
hi. Can anyone here give me some advice and hopefully some reassurance please. I’ve had AF since being diagnosed August 2022. First episode on the night coming home from a very strenuous and incident filled 2 week motor home ‘holiday’ in Scotland. Our first and probably our last. Not very restful!
hi. Can anyone here give me some advice and hopefully some reassurance please. I’ve had AF since being diagnosed August 2022. First episode on the night coming home from a very strenuous and incident filled 2 week motor home ‘holiday’ in Scotland. Our first and probably our last. Not very restful!
Talking45
in
AF Association
6 months ago
My journey with Polymyalgia Rheumatica
I was diagnosed with Polymyalgia Rheumatica in August of 2022 so I’m now approaching my 2 year mark which will be August of 2024. I am blessed to have a good family doctor who diagnosed me quickly and referred me to an equally good rheumatologist. Now the only question is how to conquer the beast. Like
I was diagnosed with Polymyalgia Rheumatica in August of 2022 so I’m now approaching my 2 year mark which will be August of 2024. I am blessed to have a good family doctor who diagnosed me quickly and referred me to an equally good rheumatologist. Now the only question is how to conquer the beast. Like
fondofforest
in
PMRGCAuk
2 months ago
Polymyalgia and Fibromyalgia
I have been taking prednisolone for a long time for polymyalgia and GCA. The rheumatologist has decided to take me off prednisolone ( slowly reducing) and putting me on to methotrexate, as she said that prednisolone can affect my bones.Since I stopped taking prednisolone I have been getting all the symptoms
I have been taking prednisolone for a long time for polymyalgia and GCA. The rheumatologist has decided to take me off prednisolone ( slowly reducing) and putting me on to methotrexate, as she said that prednisolone can affect my bones.Since I stopped taking prednisolone I have been getting all the symptoms
Chrismag
in
PMRGCAuk
2 months ago
Help with Vitamin K foods
Hello I am from Vancouver Island and had Open Heart Surgery in 2022. After my surgery they put you into this room to watch a video on Warfrin and then that's it home you go. Needless to say when I started taking Warfrin my INR was all over the map and still is but getting a bit better. The thing
Hello I am from Vancouver Island and had Open Heart Surgery in 2022. After my surgery they put you into this room to watch a video on Warfrin and then that's it home you go. Needless to say when I started taking Warfrin my INR was all over the map and still is but getting a bit better. The thing
13131958
in
Hughes Syndrome APS Forum
4 months ago
microbleeds
Hi I wondered if any of you have had micro bleeds in the brain and had to therefore come of warfarin? We’re you put on clexane/fragmin etc? How has that worked for you and what was ongoing treatment? Also have you flown ok post bleeds on a plane? TIA
Hi I wondered if any of you have had micro bleeds in the brain and had to therefore come of warfarin? We’re you put on clexane/fragmin etc? How has that worked for you and what was ongoing treatment? Also have you flown ok post bleeds on a plane? TIA
chelb29
in
Hughes Syndrome APS Forum
6 months ago
Needing some suggestions to sitting for hours in hospital
I am 26 and on warfarin for a mechanical aortic valve inserted in April 23. I need to be tested very regularly, normally every 2 weeks atleast. It must be a blood test as the pin prick tests proved unreliable in my case. I spend hours and hours waiting at St Barts for a blood test which is where I am
I am 26 and on warfarin for a mechanical aortic valve inserted in April 23. I need to be tested very regularly, normally every 2 weeks atleast. It must be a blood test as the pin prick tests proved unreliable in my case. I spend hours and hours waiting at St Barts for a blood test which is where I am
Pefki
in
Anticoagulation Support
6 months ago
Mitral Valve Af and fed up
hi all, I’ve been diagnosed nearly two years ago with AF. Cardio version worked for 5 days so was put on Amiodarone 200mg along with the usual others, Apixiban, Nebivolol. The Amiodarone messed my thyroid about so was put on a higher dose of Levothyroxine. Fast forward 5 months I get an appointment
hi all, I’ve been diagnosed nearly two years ago with AF. Cardio version worked for 5 days so was put on Amiodarone 200mg along with the usual others, Apixiban, Nebivolol. The Amiodarone messed my thyroid about so was put on a higher dose of Levothyroxine. Fast forward 5 months I get an appointment
Gilly1372
in
Atrial Fibrillation Support
7 months ago
The Early History of Polymyalgia Rheumatica and GCA
Rather a long read but may be of interest. There may well be other similar articles but I was surprised to learn here that these diseases appear to have been discovered/recognised as recently as mid-20th https://www.mayoclinicproceedings.org/article/S0025-6196(11)61208-1/fulltext
Rather a long read but may be of interest. There may well be other similar articles but I was surprised to learn here that these diseases appear to have been discovered/recognised as recently as mid-20th https://www.mayoclinicproceedings.org/article/S0025-6196(11)61208-1/fulltext
123-go
in
PMRGCAuk
3 months ago
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