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reaction to rituximab
At the beginning of January I had my first 2 infusions of rituximab - all went well but for the first 6 weeks there was no change with my RA. Then at the beginning of March my feet, hands, elbows and face were covered with blisters - saw the GP who sent me away saying it was a reaction to the rituximab
At the beginning of January I had my first 2 infusions of rituximab - all went well but for the first 6 weeks there was no change with my RA. Then at the beginning of March my feet, hands, elbows and face were covered with blisters - saw the GP who sent me away saying it was a reaction to the rituximab
LoveActuall
in
NRAS
1 month ago
rituximab
how long do people find that it takes to feel significantly better after rituximab infusion. It is now 6 weeks since my first infusion and I’m not feeling any better yet. My wrist is so painful I can’t do much at all which is very frustrating.
how long do people find that it takes to feel significantly better after rituximab infusion. It is now 6 weeks since my first infusion and I’m not feeling any better yet. My wrist is so painful I can’t do much at all which is very frustrating.
MartinJM
in
NRAS
1 month ago
Treatment changes - Rituximab?
Finally saw my consultant again last week. Think he was quite surprised at how swollen my hands have become and he said I'd done well to keep going. So am feeling a little more positive, though I'm battling through a lot of pain. The steroid jabs I had in my finger and thumb base seem to have given
Finally saw my consultant again last week. Think he was quite surprised at how swollen my hands have become and he said I'd done well to keep going. So am feeling a little more positive, though I'm battling through a lot of pain. The steroid jabs I had in my finger and thumb base seem to have given
whitedog
in
NRAS
1 month ago
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Dry throat and skin & headaches after Rituximab infusions
Hi there, I'm wondering if anyone else has experienced these symptoms after Rituximab infusions? I've just had the second dose after the first infusions 5 months ago. I had a mild reaction both times on the first of two infusions: tingly, scratchy throat and mouth. But since that first dose 5 months
Hi there, I'm wondering if anyone else has experienced these symptoms after Rituximab infusions? I've just had the second dose after the first infusions 5 months ago. I had a mild reaction both times on the first of two infusions: tingly, scratchy throat and mouth. But since that first dose 5 months
Han1
in
NRAS
2 months ago
belimumab Infusions
Hi all, I’m suppose to be starting belimumab infusions next week, however there is a shortage in the medication so I’m just waiting for a new date I’m on all the usual medication for lupus but nothing seems to be working, I have had rituximab last year and the first lot lasted 5 months which was great
Hi all, I’m suppose to be starting belimumab infusions next week, however there is a shortage in the medication so I’m just waiting for a new date I’m on all the usual medication for lupus but nothing seems to be working, I have had rituximab last year and the first lot lasted 5 months which was great
MaryannM
in
LUPUS UK
2 months ago
Rituximab
I have been on Rituximab for 4 yrs now since stopping Tocilimab . I have an elderly adopted cat l have not experienced any problems from him passing to me or me to him. I have had nothing but good results from the 2 infusions six monthly l am also on 10mg of methotrexate injections weekly and a maintenance
I have been on Rituximab for 4 yrs now since stopping Tocilimab . I have an elderly adopted cat l have not experienced any problems from him passing to me or me to him. I have had nothing but good results from the 2 infusions six monthly l am also on 10mg of methotrexate injections weekly and a maintenance
Retirednhs
in
NRAS
2 months ago
Rituximab
I had my first infusion of Rituximab two weeks ago which went very smoothly. I am due my second dose tomorrow. Unfortunately I managed to pick up a cough/cold five days ago. Does anyone know if I will be able to go ahead with the treatment ? I haven’t been able to ask due to the weekend and will just
I had my first infusion of Rituximab two weeks ago which went very smoothly. I am due my second dose tomorrow. Unfortunately I managed to pick up a cough/cold five days ago. Does anyone know if I will be able to go ahead with the treatment ? I haven’t been able to ask due to the weekend and will just
Pange63
in
NRAS
2 months ago
Weakness
Hello,I've had rheumatoid arthritis 28 years been on different drugs over years ,I have been methotrexate 25mg weekly for years folic acid I've been on rituximab every 6 months first course then 2 weeks later 2nd course for 4 year ,I'm starting to feel very weak I'm normally won't let it beat me ,I feel
Hello,I've had rheumatoid arthritis 28 years been on different drugs over years ,I have been methotrexate 25mg weekly for years folic acid I've been on rituximab every 6 months first course then 2 weeks later 2nd course for 4 year ,I'm starting to feel very weak I'm normally won't let it beat me ,I feel
Justlucy
in
NRAS
2 months ago
Question
If one responds well to rituximab/venetoclax w/o relapse, why stop the drug at two years? Thanks, Bud
If one responds well to rituximab/venetoclax w/o relapse, why stop the drug at two years? Thanks, Bud
Agiledog
in
CLL Support
2 months ago
CLL survival times ARE improving, thanks to BTK and BCL-2 inhibitors
Many of us were shocked after our CLL/SLL diagnosis when we googled for survival times. [u]Hopefully[/u] we subsequently read that search engine information from Google, Bing, etc., is way out of date, due to the fact that with CLL being a chronic disease, the relatively long survival times with this
Many of us were shocked after our CLL/SLL diagnosis when we googled for survival times. [u]Hopefully[/u] we subsequently read that search engine information from Google, Bing, etc., is way out of date, due to the fact that with CLL being a chronic disease, the relatively long survival times with this
AussieNeil
Partner
in
CLL Support
2 months ago
Help with rehab at home after acute phase of autoimmune encephalitis for my 16 year old
I am mum to a 16 year old daughter who has recently been diagnosed with autoimmune encephalitis. After several weeks in and out of A&E and several other departments, where they thought it was psychological, we were referred to the neurologists by the psychiatrist who after several tests diagnosed AE
I am mum to a 16 year old daughter who has recently been diagnosed with autoimmune encephalitis. After several weeks in and out of A&E and several other departments, where they thought it was psychological, we were referred to the neurologists by the psychiatrist who after several tests diagnosed AE
Cat29red
in
Encephalitis Society
2 months ago
PEP for asthma
Morning. Due to being immunocompromised …on Rituximab infusion. I keep getting the same chest infection. Had three lots of antibiotics over 4 weeks. I was considering buying a PEP to try and keep my chest clear. Has anyone any advice on which to buy please? TIA
Morning. Due to being immunocompromised …on Rituximab infusion. I keep getting the same chest infection. Had three lots of antibiotics over 4 weeks. I was considering buying a PEP to try and keep my chest clear. Has anyone any advice on which to buy please? TIA
Evie3
in
Asthma Community Forum
3 months ago
anti NMDA encephalitis
Hi! My husband had HSV1 encephalitis in March-April 2023, then anti NMDA encephalitis May-August 2023. He had the steroids, the plasma exchange but it was the Rituximab that finally got it sorted. I’m just looking to connect with anyone that has suffered with it or their families?! We don’t have
Hi! My husband had HSV1 encephalitis in March-April 2023, then anti NMDA encephalitis May-August 2023. He had the steroids, the plasma exchange but it was the Rituximab that finally got it sorted. I’m just looking to connect with anyone that has suffered with it or their families?! We don’t have
AntiNMDAWarriorWife
in
Headway
3 months ago
Rituximab and pets
Good day, everyone. I’m currently undergoing treatment with Rituximab and am considering adopting a cat. I would appreciate any insights regarding the risk of increased infections or other concerns related to these furry companions. Thank you.
Good day, everyone. I’m currently undergoing treatment with Rituximab and am considering adopting a cat. I would appreciate any insights regarding the risk of increased infections or other concerns related to these furry companions. Thank you.
ks1966
in
NRAS
3 months ago
does everyone take methotrexate?
hi all, I’ve been having a bit of a rough ride with RA recently, i don’t seem to be able to get my condition under very good control unless I take methotrexate with a biologic. I took methotrexate for 10 years (tolerated but lots of side effects) but then after 10 years the side effects became too
hi all, I’ve been having a bit of a rough ride with RA recently, i don’t seem to be able to get my condition under very good control unless I take methotrexate with a biologic. I took methotrexate for 10 years (tolerated but lots of side effects) but then after 10 years the side effects became too
Claire32
in
NRAS
3 months ago
Any one here with this particular ANA ?
I had just had a set of Rituximab 5 days prior, so my antibodies should have been really knocked down. My anti cardiolipin was still a bit elevated at 26 I think. ( usually it’s down from 38 to 0. ) I actually don’t know anything about this antibody- I read the SS is Sjögren specific? Is that right
I had just had a set of Rituximab 5 days prior, so my antibodies should have been really knocked down. My anti cardiolipin was still a bit elevated at 26 I think. ( usually it’s down from 38 to 0. ) I actually don’t know anything about this antibody- I read the SS is Sjögren specific? Is that right
KellyInTexas
Administrator
in
Hughes Syndrome APS Forum
3 months ago
Rheumatoid arthritis since 1995
Hi,I was diagnosed with ra 1996,been on various drugs over the years,I'm taken methotrexate self injection and rituximab infusion, I've had 2 operations on my feet joints removed and fused,I'm 65 still working which is a struggle,two year ago I was awarded the lower living pip no mobility pip,how do
Hi,I was diagnosed with ra 1996,been on various drugs over the years,I'm taken methotrexate self injection and rituximab infusion, I've had 2 operations on my feet joints removed and fused,I'm 65 still working which is a struggle,two year ago I was awarded the lower living pip no mobility pip,how do
Justlucy
in
NRAS
3 months ago
Rituximab and hair loss
Hello, I've just had my first two doses of Rituximab in February, and I've been noticing more hair loss when I wash my hair. Has anyone had this, and do you have any remedies? I have fine hair too. I'm on a mix of methotrexate, prednisolone and hydroxychloroquine. Many thanks!
Hello, I've just had my first two doses of Rituximab in February, and I've been noticing more hair loss when I wash my hair. Has anyone had this, and do you have any remedies? I have fine hair too. I'm on a mix of methotrexate, prednisolone and hydroxychloroquine. Many thanks!
poppies_are_red
in
LUPUS UK
3 months ago
Selbourn
Two weeks ago I was given, what the Rummy called a maintenance dose, of Rituximab and of course 125mg of prednisone first. All good apart from little sleep after the Pred! But now OK but very tired all the time could be the ANCA or the meds who knows. I am also having very vivid bad dreams, is anyone
Two weeks ago I was given, what the Rummy called a maintenance dose, of Rituximab and of course 125mg of prednisone first. All good apart from little sleep after the Pred! But now OK but very tired all the time could be the ANCA or the meds who knows. I am also having very vivid bad dreams, is anyone
Selbourn
in
Vasculitis UK
3 months ago
Covid Vaccines - Update
Hi All I’ve been trying to find out when we’re next due a vaccine as I’m also due another dose of rituximab and was hoping to get it done first. Just seen an update on the NHS website , immune suppressed will be offered from April.
Hi All I’ve been trying to find out when we’re next due a vaccine as I’m also due another dose of rituximab and was hoping to get it done first. Just seen an update on the NHS website , immune suppressed will be offered from April.
Galaxy2
in
Vasculitis UK
3 months ago
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