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TERRIBLE ITCHING TRIED ABOUT EVERY FTIG AND LOTIONS
HI I'm looking for anyone that has PBC and suffering from severe itching like myself all day everyday. I just had a visit with my U of Mic Dr the other day and he is looking into me having some type of procedure where they put IV in for a hour and it removes toxins and it works for some patients for
HI I'm looking for anyone that has PBC and suffering from severe itching like myself all day everyday. I just had a visit with my U of Mic Dr the other day and he is looking into me having some type of procedure where they put IV in for a hour and it removes toxins and it works for some patients for
genj65
in
PBCers Organization
5 years ago
Lung Transplant listing...
For those who already know 20 months ago I was told by Papworth that I was severe enough for a transplant but due to a damaged Oesophagus due to reflux I didn’t qualify!!! Last March I broke down in front of my respiratory consultant and told her that I felt I’d been let down by the system. She personally
For those who already know 20 months ago I was told by Papworth that I was severe enough for a transplant but due to a damaged Oesophagus due to reflux I didn’t qualify!!! Last March I broke down in front of my respiratory consultant and told her that I felt I’d been let down by the system. She personally
Lynnelovessunshine
in
Lung Conditions Community Forum
5 years ago
Post Liver Transplant
My name is Iskandar, from Tajikistan post liver transplant patient. I was under treatment from march 2018 until January 2019. My transplant surgery was done in April 2018.. Now I am on recovery period, I feel weak with Osteoporosis because of much steroids and kidney stones. Any Transplant Doctor Reco
My name is Iskandar, from Tajikistan post liver transplant patient. I was under treatment from march 2018 until January 2019. My transplant surgery was done in April 2018.. Now I am on recovery period, I feel weak with Osteoporosis because of much steroids and kidney stones. Any Transplant Doctor Reco
Jazzy_Jazz
in
British Liver Trust
5 years ago
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Question
Hey everyone, my boyfriend was diagnosed with stage 4 CKD last year, he has about 25% function left. It was such a shock to us as he is only 32 years old.... Since his diagnosis I have been canvassing the internet about information regarding kidney transplant. From what I read I think for a healthy person
Hey everyone, my boyfriend was diagnosed with stage 4 CKD last year, he has about 25% function left. It was such a shock to us as he is only 32 years old.... Since his diagnosis I have been canvassing the internet about information regarding kidney transplant. From what I read I think for a healthy person
Keeper2017
in
Kidney Disease
5 years ago
Question about transplant time.
Hey everyone, my boyfriend was diagnosed with stage 4 CKD last year, he has about 25% function left. It was such a shock to us as he is only 32 years old.... Since his diagnosis I have been canvassing the internet about information regarding kidney transplant. From what I read I think for a healthy
Hey everyone, my boyfriend was diagnosed with stage 4 CKD last year, he has about 25% function left. It was such a shock to us as he is only 32 years old.... Since his diagnosis I have been canvassing the internet about information regarding kidney transplant. From what I read I think for a healthy
Keeper2017
in
Kidney Transplant
5 years ago
CAR T versus Stem Cell transplant for Richter's
Has anyone used CAR T or stem cell transplant for advanced CLL or Richter's?
Has anyone used CAR T or stem cell transplant for advanced CLL or Richter's?
profrich
in
CLL Support
5 years ago
European Liver Patients Association - HE & HEP C
First of all I'd like to send a special thank you Jim (LAJ123) for his excellent work with the Liver Transplant Patient's Consortium. Jim very kindly sent me some information about the burden of Liver disease in Europe and in particular the case of Hepatic Encephalopathy: http://www.elpa.eu/sites/default
First of all I'd like to send a special thank you Jim (LAJ123) for his excellent work with the Liver Transplant Patient's Consortium. Jim very kindly sent me some information about the burden of Liver disease in Europe and in particular the case of Hepatic Encephalopathy: http://www.elpa.eu/sites/default
Hidden
in
British Liver Trust
5 years ago
Just an update 😊
All my bloods sorted themselves out thank god 😊 I seen the kidney consultant last week and had a chat about cannabis and that was the cause of my alt going off the wall its because I am post and also because of my kidneys I told him I been using it to sleep and that I would now just have it a couple
All my bloods sorted themselves out thank god 😊 I seen the kidney consultant last week and had a chat about cannabis and that was the cause of my alt going off the wall its because I am post and also because of my kidneys I told him I been using it to sleep and that I would now just have it a couple
jojokarak
in
British Liver Trust
5 years ago
Hep c and chronic liver disease
Hi everyone my brother is recently diagnosed with Hep c he under went 3 months medication the virus is cured but doctor is saying the liver had got some damage. They are saying he might has to go for transplant He is already a kidney transplant patient and now one more problem. Can anyone pls help
Hi everyone my brother is recently diagnosed with Hep c he under went 3 months medication the virus is cured but doctor is saying the liver had got some damage. They are saying he might has to go for transplant He is already a kidney transplant patient and now one more problem. Can anyone pls help
ankitarai267
in
Kidney Transplant
5 years ago
Desperate for a Kidney Donor
I'm have joined this Group on Behalf of My Boyfriend who is Dire Need of a Kidney Transplant. He was weeks away from actually Scheduling his Surgery when his Donor got rejected at the last minute
I'm have joined this Group on Behalf of My Boyfriend who is Dire Need of a Kidney Transplant. He was weeks away from actually Scheduling his Surgery when his Donor got rejected at the last minute
Moochy01
in
Kidney Donation
5 years ago
Infection after kidney transplant
I on my third kidney transplant 4 yrs. out. I have some kind of infection every month. Trying to find out what meds transplant patients are taking for this issues. My sister is on her third kidney transplant 5yrs. out and from day one she's been prescribed Bactim by her Doctor. I am getting no where
I on my third kidney transplant 4 yrs. out. I have some kind of infection every month. Trying to find out what meds transplant patients are taking for this issues. My sister is on her third kidney transplant 5yrs. out and from day one she's been prescribed Bactim by her Doctor. I am getting no where
noonekcb
in
Kidney Transplant
5 years ago
I just wanted to let everyone know.....
Hello family, it's Fancy. I know I have disappeared again, but I wanted everybody to know I am once again fighting secondary health issues. Had positive results on a cologuard colonoscopy test I took. So I have to go in and find out what's wrong with the colon the end of the month. On top of that I don't
Hello family, it's Fancy. I know I have disappeared again, but I wanted everybody to know I am once again fighting secondary health issues. Had positive results on a cologuard colonoscopy test I took. So I have to go in and find out what's wrong with the colon the end of the month. On top of that I don't
Fancy1959
CommunityAmbassador
in
My MSAA Community
5 years ago
Kidney Transplant Anniversaries
NKF is working on a new campaign centered around celebrating Kidney Transplant Anniversaries. While we put the finishing touches on this exciting new program, we are looking to collect Kidney Transplant Anniversary dates from our amazing community. If you are interested in sharing yours, please complete
NKF is working on a new campaign centered around celebrating Kidney Transplant Anniversaries. While we put the finishing touches on this exciting new program, we are looking to collect Kidney Transplant Anniversary dates from our amazing community. If you are interested in sharing yours, please complete
YollyD_NKF
in
Kidney Transplant
5 years ago
Bling Part 3 and a bit
Well 3 months post endobronchial valve procedure it was time to brave the M60 in the baby smart car and head off to Wythenshawe,the M60 is our northern equivalent of the M25 only less posh being oop north we only have 3 lanes and it floods a lot in places,so much for the much proclaimed Northern power
Well 3 months post endobronchial valve procedure it was time to brave the M60 in the baby smart car and head off to Wythenshawe,the M60 is our northern equivalent of the M25 only less posh being oop north we only have 3 lanes and it floods a lot in places,so much for the much proclaimed Northern power
skischool
in
Lung Conditions Community Forum
5 years ago
Lung Transplant list ...
Hi all, A while ago I posted that my mother is going through assessment to be on the transplant list ... now after what felt like an age we went to sign the papers ... I am happy but also very apprehensive about the worst case possibilities... They still need a week or so to do more internal checks but
Hi all, A while ago I posted that my mother is going through assessment to be on the transplant list ... now after what felt like an age we went to sign the papers ... I am happy but also very apprehensive about the worst case possibilities... They still need a week or so to do more internal checks but
Queenbean
in
Lung Conditions Community Forum
5 years ago
Lung Transplant Preparation
I am getting ready for a 5 day evaluation (testing & labs) for lung transplant in Nebraska-USA. I’ve been reading this site for almost a year now getting lots of good tips and do the same with a FB Transplant page. I have Idiopathic Pulmonary Fibrosis, move slowly and responded to drug therapy for
I am getting ready for a 5 day evaluation (testing & labs) for lung transplant in Nebraska-USA. I’ve been reading this site for almost a year now getting lots of good tips and do the same with a FB Transplant page. I have Idiopathic Pulmonary Fibrosis, move slowly and responded to drug therapy for
Susie-54
in
Lung Conditions Community Forum
5 years ago
My 20 year old son has adhd, and depression and he refuses to take medication. He also had a liver transplant at age 10!
His father and I had a tumultuous relationship, DV, and emotional and verbal abuse by both of us, all of my only child’s life ! My son is not working because he says when he applies for jobs online no one calls him back. He never talks to me about anything really so I don’t know what’s going on with
His father and I had a tumultuous relationship, DV, and emotional and verbal abuse by both of us, all of my only child’s life ! My son is not working because he says when he applies for jobs online no one calls him back. He never talks to me about anything really so I don’t know what’s going on with
Matheu25
in
CHADD's ADHD Parents Together
5 years ago
Transplant list
So today I took the first step for getting on the kidney transplant list. I attended a series of meetings. The first meeting was with a transplant coordinator, then with a social worker, then I met with a transplant surgeon and finally with a kidney dietician. It is so surreal for me. I was diagnosed
So today I took the first step for getting on the kidney transplant list. I attended a series of meetings. The first meeting was with a transplant coordinator, then with a social worker, then I met with a transplant surgeon and finally with a kidney dietician. It is so surreal for me. I was diagnosed
Socky
in
Kidney Transplant
5 years ago
Odd rash?
Hey gang 😊! Below is a picture of something that has reappeared on my back? I had the same thing a week post transplant? Consultant and GP were quite confused! It was ouch to the touch and disappeared after around a week. Any one post liver transplant had any thing similar?
Hey gang 😊! Below is a picture of something that has reappeared on my back? I had the same thing a week post transplant? Consultant and GP were quite confused! It was ouch to the touch and disappeared after around a week. Any one post liver transplant had any thing similar?
Poobear69
in
British Liver Trust
5 years ago
QE, Birmingham 5000 Liver Transplant Party
I happened to be up at the QE last night for our monthly meeting of the the "Liver Transplant Support Group". These are the guys who visit and talk with patients on the ward after having had their transplant and who talk about their experiences to those people attending the transplant assessment. (Some
I happened to be up at the QE last night for our monthly meeting of the the "Liver Transplant Support Group". These are the guys who visit and talk with patients on the ward after having had their transplant and who talk about their experiences to those people attending the transplant assessment. (Some
Hidden
in
British Liver Trust
5 years ago
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