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updated Sjögren’s leaflet
https://sjogrensresearch-ireland.eu/wp-content/uploads/2022/09/Sjogrens-information-leaflet_2023-1.pdf Might be of interest!
https://sjogrensresearch-ireland.eu/wp-content/uploads/2022/09/Sjogrens-information-leaflet_2023-1.pdf Might be of interest!
weathervane
in
LUPUS UK
7 months ago
Husband with Cirrhosis
Hi all. I’m new to this group and after some help. My husband is in alcoholic recently diagnosed with Cirrhosis after an internal bleed, bruising, fatigue and spider veins on his upper body. He’s an alcoholic. He’s in total denial about it all and is still drinking every day (about 2 cans of Stella)
Hi all. I’m new to this group and after some help. My husband is in alcoholic recently diagnosed with Cirrhosis after an internal bleed, bruising, fatigue and spider veins on his upper body. He’s an alcoholic. He’s in total denial about it all and is still drinking every day (about 2 cans of Stella)
Hol1Day01
in
British Liver Trust
9 months ago
Pursuing Smaller, Faster Clinical Trials For Progressive Neurological Disorders
It’s easy to be pessimistic when it comes to investigating Parkinson’s disease. The condition, which causes progressive damage to brain cells over many years, has no therapy to halt its progression, with current treatments focusing only on symptom management. The challenges in Parkinson’s drug development
It’s easy to be pessimistic when it comes to investigating Parkinson’s disease. The condition, which causes progressive damage to brain cells over many years, has no therapy to halt its progression, with current treatments focusing only on symptom management. The challenges in Parkinson’s drug development
Farooqji
in
Cure Parkinson's
9 months ago
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Kidney Stones
I’m 19 months into ADT (Lupron) following open RP and 38 rounds of radiation last summer. All treatments or for Gleason 9 (5/4) PC that had spread outside the prostate. A few weeks ago I started getting loose bowels, incontinence and blood in my urine. My urologist thought I had radiation cause cancer
I’m 19 months into ADT (Lupron) following open RP and 38 rounds of radiation last summer. All treatments or for Gleason 9 (5/4) PC that had spread outside the prostate. A few weeks ago I started getting loose bowels, incontinence and blood in my urine. My urologist thought I had radiation cause cancer
Parlorman
in
Advanced Prostate Cancer
9 months ago
when to test child for CD?
Those of you with CD diagnosed in adulthood but with children - is there any evidence to suggest it’s beneficial to limit gluten in the diet? A fellow coeliac recently told me age 4 is when to get tested but he couldn’t recall where he got that info from. My daughter has no obvious signs and we haven
Those of you with CD diagnosed in adulthood but with children - is there any evidence to suggest it’s beneficial to limit gluten in the diet? A fellow coeliac recently told me age 4 is when to get tested but he couldn’t recall where he got that info from. My daughter has no obvious signs and we haven
Anj1a
in
Gluten Free Guerrillas
7 months ago
Promising treatments in the 2023 Parkinson's clinical trials pipeline
https://www.parkinson.ca/promising-treatments-in-the-2023-parkinsons-clinical-trials/ "Phase 3 DMT trials completing in 2023: Memantine : Alzheimer's drug that aims to reduce cognitive impairment in Parkinson's. Ganoderma/Lingzh : Mushrooms from traditional Chinese medicine are being studied
https://www.parkinson.ca/promising-treatments-in-the-2023-parkinsons-clinical-trials/ "Phase 3 DMT trials completing in 2023: Memantine : Alzheimer's drug that aims to reduce cognitive impairment in Parkinson's. Ganoderma/Lingzh : Mushrooms from traditional Chinese medicine are being studied
nednedned
in
Cure Parkinson's
9 months ago
Psalm 119:143
As a believer that Jesus Christ is God and I have found him as my Lord & Saviour. The Bible has become a living book to me. its my comfort, my guide and my medicine, for sleep, peace of mind etc!! Thats why i write under the title Psalm 119:143! Trouble and Calamity have found me in the form of Parkinsons
As a believer that Jesus Christ is God and I have found him as my Lord & Saviour. The Bible has become a living book to me. its my comfort, my guide and my medicine, for sleep, peace of mind etc!! Thats why i write under the title Psalm 119:143! Trouble and Calamity have found me in the form of Parkinsons
Psalm119143
in
Cure Parkinson's
9 months ago
Looking for my Miracle
I've had persistent AFib for decades. Cardiologist and EP suggested ablation, watchman, every pill and treatment out there but I never felt they were the right thing to do, other than taking many meds, Altace, Toprol XL, Amiodarone, etc. Most recently I had to go onto Xarelto, 'tho I resisted it for
I've had persistent AFib for decades. Cardiologist and EP suggested ablation, watchman, every pill and treatment out there but I never felt they were the right thing to do, other than taking many meds, Altace, Toprol XL, Amiodarone, etc. Most recently I had to go onto Xarelto, 'tho I resisted it for
TheJazzSinger132
in
AF Association
6 months ago
After BCR and PSA Return: An Update on My Treatment Path
Hi Everyone, I realize it's been quite a while since I last shared an update on my journey. I thought it was high time to share how things have been going for me, especially considering the somewhat controversial path I decided to take in early 2022 following Biochemical Recurrence (BCR) and the early
Hi Everyone, I realize it's been quite a while since I last shared an update on my journey. I thought it was high time to share how things have been going for me, especially considering the somewhat controversial path I decided to take in early 2022 following Biochemical Recurrence (BCR) and the early
PGDuan
in
Advanced Prostate Cancer
9 months ago
Finally some progress
Those who followed our Journey, know this is such a painful process of grief. Two weeks ago, the hospital wrote it would not change the factual information in my wife's chart. In her chart it had been written she had Biopys proven Nash Cirrhosis, which led doctors looking at ultrasounds that said
Those who followed our Journey, know this is such a painful process of grief. Two weeks ago, the hospital wrote it would not change the factual information in my wife's chart. In her chart it had been written she had Biopys proven Nash Cirrhosis, which led doctors looking at ultrasounds that said
Wolivere
in
British Liver Trust
9 months ago
Ongoing BCR case. Advices are appreciated.
RP 09/17/2015 GS 7(4+3), PNI,SVI, ECE, positive margins (35% right half, 15% left half (PT3b N0M0)) 11/12/2015 PSA 0.06 first postop 01/13/2016 finished adjuvant RT 6600 cGy/33x to prostate bed 02/22/2016 PSA 0.03 first post RT 05/13/2019 PSA 0.11 DETECTABLE 01/29/2020
RP 09/17/2015 GS 7(4+3), PNI,SVI, ECE, positive margins (35% right half, 15% left half (PT3b N0M0)) 11/12/2015 PSA 0.06 first postop 01/13/2016 finished adjuvant RT 6600 cGy/33x to prostate bed 02/22/2016 PSA 0.03 first post RT 05/13/2019 PSA 0.11 DETECTABLE 01/29/2020
MSTI
in
Advanced Prostate Cancer
9 months ago
nephrectomy
I have to have a nephrectomy because I have a tumor on my kidney and cyst I have polycythameia Vera anyone had this surgery with polycythameia
I have to have a nephrectomy because I have a tumor on my kidney and cyst I have polycythameia Vera anyone had this surgery with polycythameia
Sickey
in
MPN Voice
9 months ago
Hello - I'm a new member
Hello, I've just joined today and wanted to say hello. I was diagnosed with Rheumatoid Arthritis around 26 years ago, and it's been quite a journey. I've been on numerous treatments over the years, and had several surgeries. Fortunately, I've managed to keep working - although it's becoming more
Hello, I've just joined today and wanted to say hello. I was diagnosed with Rheumatoid Arthritis around 26 years ago, and it's been quite a journey. I've been on numerous treatments over the years, and had several surgeries. Fortunately, I've managed to keep working - although it's becoming more
WendyB123
in
NRAS
7 months ago
Just joined
Hi everyone, just want to say hello and am pleased that I am now part of this online community. I've had Rheumatoid Arthritis for over 30 years now and it's good to be able to hear from others in the same situation .
Hi everyone, just want to say hello and am pleased that I am now part of this online community. I've had Rheumatoid Arthritis for over 30 years now and it's good to be able to hear from others in the same situation .
AcerGirl
in
NRAS
7 months ago
LDH Question
My typical quarterly checkup with my CLL doctor follows a certain routine - I have the blood draw and then, as soon as CBC results are available, I see the doctor or his nurse practitioner. And then, long after I've left the office, the other blood results are available, including LDH. So, in other
My typical quarterly checkup with my CLL doctor follows a certain routine - I have the blood draw and then, as soon as CBC results are available, I see the doctor or his nurse practitioner. And then, long after I've left the office, the other blood results are available, including LDH. So, in other
hhk50
in
CLL Support
9 months ago
low dose naltrexone
Having Crohn’s disease I was wondering if anyone has any experience with this drug and if it has proven to be effective or not? my diet is pretty limited at moment but I’m hearing that this will inhibit inflammation to allow me to open up my diet more.
Having Crohn’s disease I was wondering if anyone has any experience with this drug and if it has proven to be effective or not? my diet is pretty limited at moment but I’m hearing that this will inhibit inflammation to allow me to open up my diet more.
Howson123
in
Crohn's and Colitis Support
9 months ago
mitral valve regurgitation and AF
Hello . I was diagnosed with mild to moderate MVR last November . No symptoms other than slight breathlessness . Yesterday on another echocardiogram I was informed I have AF - no symptoms at all . It has made me very anxious . Has anyone else experience of both ? I am 57 , very very fit , not overweight
Hello . I was diagnosed with mild to moderate MVR last November . No symptoms other than slight breathlessness . Yesterday on another echocardiogram I was informed I have AF - no symptoms at all . It has made me very anxious . Has anyone else experience of both ? I am 57 , very very fit , not overweight
Mumthree
in
AF Association
3 months ago
Metastasized to Bones
I have been seeing post saying poeple being diagnosed with metastasized PC. I was diagnosed with PC metastasized to my bones, after being under urologist care for 18 months I am wondering if poeple who get initially diagnosed with metastasized PC, whether it is because they were not under medical care
I have been seeing post saying poeple being diagnosed with metastasized PC. I was diagnosed with PC metastasized to my bones, after being under urologist care for 18 months I am wondering if poeple who get initially diagnosed with metastasized PC, whether it is because they were not under medical care
hopefull99
in
Advanced Prostate Cancer
7 months ago
PD sucks
PD suspected by GP in November 2022. Confirmed by neurologist in January 2023. Tried different meds - now on rotigotine patches plus after research, I now take mucuna morning and afternoon. Supposed to provide 240mg L-Dopa each day. It helps with constipation. What bothers me most is poor
PD suspected by GP in November 2022. Confirmed by neurologist in January 2023. Tried different meds - now on rotigotine patches plus after research, I now take mucuna morning and afternoon. Supposed to provide 240mg L-Dopa each day. It helps with constipation. What bothers me most is poor
reefeye
in
Cure Parkinson's
9 months ago
Stating and underactive thyroid
Hi I suffer with underactive thyroid and fibromalarga reciently I got put on stating for high colesteral after 3 day I stopped them my muscles felt like I'd been hit buy a bus i
Hi I suffer with underactive thyroid and fibromalarga reciently I got put on stating for high colesteral after 3 day I stopped them my muscles felt like I'd been hit buy a bus i
shazzafloyd
in
Thyroid UK
7 months ago
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