itch left upper back: a while back someone posted... - PMRGCAuk

PMRGCAuk

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itch left upper back

Twopies profile image
23 Replies

a while back someone posted the name of a condition relating to autoimmune illnesses where you have itching on your upper back, left hand side, no rash. It sometimes accompanies autoimmune illnesses. I use Sarna lotion which is what I seem to recall the poster using as well. Anyone remember the name of this syndrome? Thanks!

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Twopies profile image
Twopies
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PMRpro profile image
PMRproAmbassador

Do you mean urticaria?

Twopies profile image
Twopies in reply to PMRpro

Nope. A name I’d never heard of. And there are no marks on the skin at all, just itching. I’m seeing my dermi today, ill ask her but doubt she knows…

Nightingales profile image
Nightingales in reply to Twopies

Please let us know if you find out. I get exactly those symptoms and it often portends a flare. Thank goodness for back scratchers!

posthinking01 profile image
posthinking01

Here you go !

medicalnewstoday.com/articl...

Twopies profile image
Twopies in reply to posthinking01

That might be it—it’s a name I never heard of so yes, a possibility. Got a good laugh at the suggested exercises! 😂😳

posthinking01 profile image
posthinking01

I have it drives me mad - have 4 auto immune conditions- yes just wanted the name really but not convinced - probably a liver kidney tweak or similar or vitamin deficiency that causes that nerve to be hyper - I used to do reflexology years ago all parts of body are linked to an internal organ along the line so is the spine !

pegpowell profile image
pegpowell in reply to posthinking01

Thanks for the information. I have had the itch for years. A dermatologist had no answer, My back scratcher has been a great reliever. Ointment would help if I could only reach there with my hand.

posthinking01 profile image
posthinking01 in reply to pegpowell

I know its so difficult to get to I suppose could use a bath/shower brush to thoroughly soap up ensuring you rinse well - but always worried about those brushes harbouring bugs or fungus due to being left damp and making the matter worse - looks like we can now identify with those animals who sidle up to a tree and have a good scratch !

posthinking01 profile image
posthinking01 in reply to pegpowell

What about coating the scratcher with some ointment or lotion - not sure it would work but worth a try !

pegpowell profile image
pegpowell in reply to posthinking01

The bath brush was useless, couldn't even reach the spot and it was too soft. The Chinese back scratcher is conveniently next to my computer, ready for use anytime. I don't think my Sarna lotion would stick very well to it.

9lives profile image
9lives

hi I have an itch between my shoulder blades. In the area Where the bra clips are . It’s not always there , it comes and goes. no marks or rash on skin. I saw my GP and she said it was called notalgia. She didn’t give me anything for it.

I find if I’m a bit stressed or over done it, it sometimes flares up.

Don’t know if this helps you.

It’s a bit annoying at times but otherwise I can manage ok.

I’ve had it a couple of years now

Carole

Twopies profile image
Twopies in reply to 9lives

Mine is my left upper quadrant, above my waist, below my bra. Almost always there, I have learned to tune it out most of the time. I guess, I’ve always been uber limber so I can rub Sarna on it on the days it’s particularly noticeable. I tell myself that as the pmr burns itself out, so will the itch? Because it’s a bellwether of my unfortunately alive and well pmr?

posthinking01 profile image
posthinking01 in reply to Twopies

Yes that's where mine is and I have drawn blood scratching it !

Janstr profile image
Janstr

have you considered that it may be an related to the soap or shampoo that you’re using? My husband had a similar problem after one of the Covid jabs, & a specialist gave him something to use in place of soap. He’s was also told not to shower every day

Twopies profile image
Twopies in reply to Janstr

Thanks; I don’t use any soap or lotion whatsoever. My shampoo is salicylate, sulfite and odor free. And I haven’t had any of the vaccines (allergic to contents of them).

Aqua47 profile image
Aqua47

I’m glad you brought up this condition. I’ve had this for probably 4-5 years. I went to the dermatologist and he said it was caused by a nerve in my neck. He had no solution except creams. I’ve tried about 3 different kinds with no effect. I just tried the capsaicin cream a few weeks ago. Also didn’t help, but maybe I wasn’t persistent enough. I read the article someone on the forum suggested. NP is definitely what I have, with the skin pigmentation in a large area. Thankfully I can reach to scratch! I’m wondering if the nerve block someone suggested would help me? Does anyone know if this is the same as an ablation?

PMRpro profile image
PMRproAmbassador in reply to Aqua47

Not sure about this particular case but usually a nerve block is using local anaesthesia which then lasts an indefinite time, usually 8 hours or so but sometimes is enough to retrain the pain sensation and it doesn't return as strongly or even at all.

Ablation is a more permanent solution, it is done by damaging the nerve so it can't transmit the pain sensation. It usually lasts months and may be permanent.

excelpainandspine.com/treat....

posthinking01 profile image
posthinking01 in reply to PMRpro

Hi its not a pain but an itch

PMRpro profile image
PMRproAmbassador in reply to posthinking01

Pain and itch are just different types of signals through nerves - and you would do a similar procedure to stop transmission of the sensation.

Aqua47 profile image
Aqua47 in reply to PMRpro

I’m not sure who posted about the nerve block. I couldn’t find it when I was sending this reply. I had an ablation for lower back and hip pain in December, and it helped that problem. I’m sure I would have to have another MRI before a doctor would treat the itching problem that way.

Twopies profile image
Twopies in reply to Aqua47

We might have something different. I don’t have any change in skin pigmentation and Sarna cream works just fine.

Aqua47 profile image
Aqua47 in reply to Twopies

I will have to try the Sara cream.

posthinking01 profile image
posthinking01 in reply to Aqua47

I am not posting this article because of what they sell etc. but I thought the diagnosis was pretty interesting.

drbaileyskincare.com/blogs/...

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