Reduction of MTX : Has anyone found after 2 weeks... - NRAS

NRAS

36,725 members45,363 posts

Reduction of MTX

CJFC1717 profile image
13 Replies

Has anyone found after 2 weeks reduction of 5 mg that they feel improvement and that hand joints are not so restricted??

Written by
CJFC1717 profile image
CJFC1717
To view profiles and participate in discussions please or .
Read more about...
13 Replies
helixhelix profile image
helixhelix

Absolutely the opposite!! Really struggling at the moment because of having had to reduce drugs,

CJFC1717 profile image
CJFC1717 in reply to helixhelix

Sorry to hear your reply, good luck 🤞

CJFC1717 profile image
CJFC1717 in reply to helixhelix

So sorry, thank you for replying, wishing you progress soon 🤞

Gnarli profile image
Gnarli

Unfortunately not. My MTX was reduced from 20mg to 17.5mg and, from about four weeks after, the symptoms are building up. The RD seems to be on a whole body grand tour swelling joints , affecting tendons and the fatigue is as it was in the beginning. I am seeing the rheumy nurse on Tuesday to discuss options

CJFC1717 profile image
CJFC1717 in reply to Gnarli

So sorry to hear your news. Sincyhope improvement is in sight for you 🤞

CJFC1717 profile image
CJFC1717 in reply to Gnarli

Good luck lass 🙌

Gilliancheche profile image
Gilliancheche

Mine was reduced from 20 to 10. No improvement except hair loss is reduced 😂

CJFC1717 profile image
CJFC1717 in reply to Gilliancheche

🙋🙋 wishing you better progress

Bookworm55 profile image
Bookworm55

My mtx dose has been INCREASED by 5 mg in the last 3 weeks as for the first time in 6 years I was flaring. The increase seems to have decreased both my RA symptoms and the inflammation levels in my blood.

CJFC1717 profile image
CJFC1717 in reply to Bookworm55

Thank you it's amazing how everyone is experiencing different symptoms

Sheila_G profile image
Sheila_G

I am going back about 10 years now but I was on 20mg of mxt and a betablocker and had been taking these for a few years. My joints were ok but I started to feel quite unwell. On the advice of my Consultant I stopped the betablockers and my Rheumatologist said I could try reducing mxt to 17.5mg. I felt so much better which was probably because I wasn't taking the betablockers but I am still on 17.5mg mxt and am really well most of the time. Of course, I still get flares but I am happy on the reduced amount. I must stress that you don't do this unless your Rheumatologist says you can. Everyone is different and it might not help you as it did me. Good luck

CJFC1717 profile image
CJFC1717 in reply to Sheila_G

Thank you for your vast information. Good luck

Sarmita50 profile image
Sarmita50

I can't reduce the dose of MTX. I have flare ups when l try to do so.At the moment l am having a piercing pain on right ear lobes. Drs cannot diagnose. Given me codiene pain killers. I can't have too many pain killers as l have a pacemaker. My Rheumatogist thiinks it is not related to RA. Possibly from my neck.puutting pressure on my ear nerves. ENT could not find anything wrong with my ears and seem to think it is from RA or wear and tear of small bones around my ear. Dentist don't think it TMJ. I think it could be Occipital neuralgia by reading internet information. I found applying eat pad it gives a bit relief. My GP is referred me to Pain Relief centre and my Rheumatogist to Physio.

Does anyone have pain in earlobes and mine comes down to neck and te back of my skull only on my right side. Many thanks.

You may also like...

Gabapentin reduction

mtx & leflunomide verses mtx and hydroxy

a cost reason or a drug reaction reason. if anyone has any experience with swapping hydroxy for...

Rituximab minus MTX? Anyone on Rituximab but not taking MTX?

aitc*!! Grr. ;-) Laptop going in for repair next week as need it for scanning docs by email for...

Splitting the dose of MTX?

Hydroxy - I thought I'd ask here if anyone knows why we take MTX once a week always unlike other...

How much alcohol with MTX?

nurse said no alchol on MTX day or within 2 days after. I am going to a champagne dinner on new...