Hi everyone I'm bk its been while.. I'm rach 33 2 kids...ive been diagnosed nearly 12 years now.. I take rivaroxaban as warfarin didn't seem work. Ive been intensive care twice and 2 major PEs both lungs twice. And clots elsewhere. Been left with vein damage both leg due DVT.... Had a pregnancy which resulted in my girl being born at 33 weeks...all ended uo well and she now 8 and doing well..I have a permanent ivc filter and was steralised at 29 which had beg 4... Life is good at mo...feel free message or ask me anything
Hi all: Hi everyone I'm bk its been... - Hughes Syndrome A...
Hi all
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rach1081985
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HollyHeskiAdministrator
Welcome back, your story is sadly a common one for us.
So glad your children and you are doing well and thank you for sharing and offering to help others.
Hi, I also didn’t do well on warfarin. That seems rather uncommon as most people are fine on it. I take apixiban, which works in a different way from rivaroxiban.
Was your clotting while you were on warfarin? How long have you been on rivaroxiban?
I’m glad you’re doing well.
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